Thank you, healthcare workers, for all you do. Your determination to help others is truly inspiring. Please stay safe.
Strategies for Successfully Providing Multidisciplinary Care in Huntington’s Disease
E-Publication E-Publication

Strategies for Successfully Providing Multidisciplinary Care in Huntington’s Disease


This activity was developed through a collaboration between Boston University School of Medicine and Med-IQ.

BU School of Medicine          Med-IQ
 

Released:
8/7/2020
Expires:
8/6/2021

Maximum Credits:

1.0
By clicking "Continue," you confirm that you have reviewed the CME information.

E-Publication E-Publication
By clicking "Continue," you confirm that you have reviewed the CME information.
Released:
8/7/2020

Expires:
8/6/2021

Maximum Credits:
1.0
E-Publication E-Publication
By clicking "Continue," you confirm that you have reviewed the CME information.

Released:
8/7/2020
Expires:
8/6/2021


Maximum Credits:
1.0


Overview: Patients with Huntington’s disease (HD) experience cognitive, psychiatric, and motor symptoms that worsen as the disease progresses, underscoring the need for a multidisciplinary approach to care. This activity incorporates key learnings from a virtual HD Project ECHO® series, held in collaboration between Boston University School of Medicine and Med-IQ, that was conducted between HD experts and regional clinicians on overcoming challenges in the multidisciplinary management of patients with HD. The publication reviews 5 topics: genetics and diagnosis in HD, cognitive and psychiatric symptoms, motor symptoms, patient care in late-stage HD, and emerging therapies in HD. Additionally, it features audio clips of expert faculty to provide further guidance on common care challenges for patients with HD.

CME Information:

Faculty
Stephanie Bissonnette, DO, MPH
Course Director
Director, Huntington’s and Ataxia Clinic
Boston Medical Center
Assistant Professor of Neurology
Boston University School of Medicine
Boston, MA 

Raymond James, BS, RN
Nurse Advisor
Clinical Research Nurse
Parkinson's Disease and Movement Disorders Center
Boston University Medical Campus
Boston, MA

Marie-Hélène Saint-Hilaire, MD, FRCPC, FAAN
Medical Director
Parkinson’s Disease and Movement Disorders Center 
Professor of Neurology
Boston University School of Medicine
Boston, MA

Lillian Torrey Sosa, MS, CGC
Assistant Professor of Obstetrics and Gynecology 
Assistant Program Director 
Master's Program in Genetic Counseling 
Boston University School of Medicine 
Boston, MA 
 
Activity Planners
Anindita Deb, MD
Assistant Professor of Neurology 
Co-Chief, Movement Disorders Division
University of Massachusetts Medical School
UMass Memorial Medical Center
Worcester, MA

Samuel A. Frank, MD
Associate Professor of Neurology
Beth Israel Deaconess Medical Center
Director, HDSA Center of Excellence at BIDMC
Boston, MA

Jaime Symowicz, PhD
Manager, Educational Strategy and Content
Med-IQ
Baltimore, MD

Laura Rafferty, ELS
Senior Managing Editor
Med-IQ
Baltimore, MD

Samantha Gordon
CME Specialist
Med-IQ
Baltimore, MD

Carmela A. Townsend, DNP, MS/MBA, RN
Lead Nurse Planner
Continuing Nursing Education
Boston University School of Medicine
Boston, MA

Ilana Hardesty
Senior Operations Manager
SCOPE of Pain
Barry M. Manuel Continuing Medical Education Office
Boston, MA

Julie White, MS, CHCP
Director, Continuing Medical Education
Boston University School of Medicine 
Barry M. Manuel Continuing Medical Education Office
Boston, MA  

Writer
Katherine Kahn                                            
Holyoke, MA  
  
Intended Learning Outcome
Our overall intended learning outcome for this activity is to increase competency among clinicians caring for individuals suspected to have or who have been confirmed to have Huntington’s disease.

Upon completion, participants should be able to:

  • Summarize the role of genetic testing in confirming an HD diagnosis
  • Implement best practice recommendations to provide comprehensive HD treatment to alleviate cognitive, psychiatric, and motor symptoms
  • Identify best practice recommendations for the care of patients in the advanced stages of HD
  • Describe the disease-modifying therapies currently under investigation for HD and their potential role in clinical practice

Target Audience
This activity is intended for neurologists, primary care physicians, nurses, geneticists, social workers, psychiatrists, and psychologists.
 
Statement of Need
HD is a rare, progressive, and debilitating autosomal dominant neurologic disorder characterized by motor symptoms, cognitive impairment, and psychiatric problems. In the last 5 to 10 years, rapid developments have occurred related to diagnostic tests and treatments available for HD. Unfortunately, not all patients and families live near centers with access to these resources to receive specialized care. For these reasons, healthcare providers providing care for these individuals and their families need to stay up-to-date on the latest advances in genetic testing and management strategies as well as new therapies currently under clinical investigation.  

Collaboration Statement
This activity was developed through a collaboration between Boston University School of Medicine and Med-IQ.  
 
Accreditation/Designation Statements
Boston University School of Medicine is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. 

Boston University School of Medicine designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Boston University School of Medicine Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

Contact Hours: 1.0

Other healthcare professionals who successfully complete the activity will receive a Statement of Participation indicating the maximum credits available. 
 
Medium/Method of Participation
This CME/CE activity consists of a 1.0-credit online publication. To receive credit, read the introductory CME/CE material, read the publication, listen to the audio clips, and complete the post-survey, evaluation, attestation, and post-test, answering at least 70% of the post-test questions correctly. 

Initial Release Date: August 7, 2020
Expiration Date: August 6, 2021
Estimated Time to Complete This Activity: 1 hour 

Disclosure Policy
Boston University School of Medicine asks all individuals, and their spouses/partners, involved in the development and presentation of Continuing Medical Education (CME) and Nursing Continuing Professional Development (NCPD) activities to disclose all relevant financial relationships with commercial interests. This information is disclosed to all activity participants prior to the start of the educational activity. Boston University School of Medicine has procedures to resolve all conflicts of interest. In addition, faculty members are asked to disclose when any unapproved use of pharmaceuticals and devices is being discussed.

Off-label/unapproved drug uses or products are mentioned within this activity. 

Disclosure Statement
The content of this activity has been peer reviewed and has been approved for compliance. The faculty and contributors have indicated the following financial relationships, which have been resolved through an established conflict of interest resolution process.

Stephanie Bissonnette, DO, MPH
Consulting fees/advisory boards: sRNAlytics.com

Anindita Deb, MD, has no relevant financial relationships with ACCME-defined commercial relationships to disclose.

Samuel A. Frank, MD
Research: Genentech

Raymond James, BS, RN, has no relevant financial relationships with ACCME-defined commercial relationships to disclose.

Marie-Hélène Saint-Hilaire, MD, FRCPC, FAAN, has no relevant financial relationships with ACCME-defined commercial relationships to disclose.

Lillian Torrey Sosa, MS, CGC, has no relevant financial relationships with ACCME-defined commercial relationships to disclose. 
 
The writer, peer reviewers, and other activity planners have no relevant financial relationships with ACCME-defined commercial relationships to disclose.
 
Statement of Evidence-Based Content
Educational activities that assist physicians in carrying out their professional responsibilities more effectively and efficiently are consistent with the ACCME definition of continuing medical education (CME). As an ACCME-accredited provider of CME, it is the policy of Med-IQ to review and ensure that all the content and any recommendations, treatments, and manners of practicing medicine in CME activities are scientifically based, valid, and relevant to the practice of medicine. BUSM and Med-IQ are responsible for validating the content of the CME activities it provides. Specifically, (1) all recommendations addressing the medical care of patients must be based on evidence that is scientifically sound and recognized as such within the profession; (2) all scientific research referred to, reported, or used in CME in support or justification of a patient care recommendation must conform to generally accepted standards of experimental design, data collection, and analysis.

BUSM and Med-IQ are not liable for any decision made or action taken in reliance upon the information provided through this activity. 
 
Contact Information        
For CME related questions or comments about this activity, please contact Boston University School of Medicine. Call 617-358-5005 or email cme@bu.edu.

For technical questions or comments about this activity, please contact Med-IQ. Call (toll-free) 866 858 7434 or email info@med-iq.com.

System Requirements

Desktop

Mobile

  • Operating system - Med-IQ supports the current operating system, plus two prior releases:
    • Android (eg, Samsung Galaxy)
    • Apple (eg, iPhone/iPad)
  • Browsers - Med-IQ supports the default browser for the applicable operating system release, plus two prior releases:
    • Android (Chrome)
    • Apple (Safari)

Applications & Software

For technical assistance, please refer to our Support Manual.

ADA Statement
BUSM CME complies with the ADA and the rules and regulations thereof to make reasonable accommodations for our educational activities. If any participant in this educational activity is in need of accommodations, please contact BUSM CME at 617-358-5005. 

Disclaimer
This continuing medical education program is intended solely for educational purposes for qualified health care professionals. In no event shall Boston University be liable for any decision made or action taken in reliance on the information contained in the program. In no event should the information contained in the program be used as a substitute for professional care. No physician-patient relationship is being established. In no event should information in the materials regarding laws, regulations, or legal liability be considered legal advice or used as a substitute for consulting with an attorney. 

Privacy & Confidentiality
Med-IQ is committed to honoring your privacy and protecting any personal information you choose to share with us. For detailed information about our privacy notice, please visit: www.med-iq.com/privacy-statement/.

Acknowledgment of Commercial Support
This activity is supported by an educational grant from Genentech. 
 
Copyright
© 2020 Med-IQ, Inc.

Unless otherwise indicated, photographed subjects who appear within the content of this activity or on artwork associated with this activity are models; they are not actual patients or doctors.

Need help? If you need to speak with a member of our team, please call (toll-free) 866 858 7434 or email info@med-iq.com. For technical assistance, please refer to our support manual.

We recently updated our Privacy Notice and Terms of Use.